Wednesday, October 1, 2014
7 year Cancerversary! WOOTx2!
That's right kids! I just celebrated my 7 year CANCER FREE mark! Here's to many more cancer free years! I still have to go in for PET scans every year for who knows how long, but it's a small price to pay.
Friday, October 7, 2011
4 year CANCERVERSARY!
That's right folks! A few days ago I celebrated my 4 year CANCERVERSARY!
WOOT WOOT!
WOOT WOOT!
Monday, January 24, 2011
Ain't no party like a PET scan party...
'Cause a PET scan party don't stop! I'm sitting in the chair waiting to be scanned. My oncologist bumped my PET scan up by 6 months because my tonsils were showing uptake.
If they are still showing uptake, I will have them cut out! Doesn't that sound like a shit load of fun?
- Posted using BlogPress from my iPhone
If they are still showing uptake, I will have them cut out! Doesn't that sound like a shit load of fun?
- Posted using BlogPress from my iPhone
Thursday, October 21, 2010
2011 Pinup Calendar! Proceeds donated to Leukemia and Lymphoma Society!
You all asked for it, now here it is! The official 2011 Boudoir Louisville Pinup Girl Calendar!
Proceeds from the sale of this snazzy calendar will be donated to The Leukemia and Lymphoma Society. As some of you may know, 3 years ago I beat stage IV Hodgkin's Lymphoma. Order a few, they make FANTASTIC gifts! It's only a buck-a-month! Cough it up you cheapskate.
CLICK HERE to order your very own copy!
Wednesday, July 21, 2010
Still cancer free!
I'm sitting in the chair at my oncology office with a needle hanging out of my port!
Good times!
Just got the results from my PET scan, I'm still cancer free!!!
My tonsils were showing uptake, so now those need to come out! Guess I'll be sitting around eating ice-cream for a few days!
- Posted using BlogPress from my iPhone
Good times!
Just got the results from my PET scan, I'm still cancer free!!!
My tonsils were showing uptake, so now those need to come out! Guess I'll be sitting around eating ice-cream for a few days!
- Posted using BlogPress from my iPhone
Tuesday, July 13, 2010
Had another PET scan today...
Today I had another PET scan...
HOPEFULLY a non-eventful PET scan.
They gave me a disc of the scan images, but I have not had a chance to give it a look. My oncology appointment isn't for another week. BLA BLA BLA, same story every 6 months!
HOPEFULLY a non-eventful PET scan.
They gave me a disc of the scan images, but I have not had a chance to give it a look. My oncology appointment isn't for another week. BLA BLA BLA, same story every 6 months!
Sunday, June 27, 2010
Clogged up port!
So today I went in to my oncologist's office for my monthly port flush. YES, I still have my port after a few years!
The nurse tried to get blood out of the thing but couldn't. It was totally clogged with butter and bacon fat!
We found early on that I needed to have my port flushed every 4 weeks. I got so damn busy last month I TOTALLY forgot to go in for my flush.
The nurse loaded it full of some liquid that would dissolve the blood clot that was in the port.
WAIT A FRIGGIN' MINUTE!
BLOOD CLOT?!!!
Don't those kill people?
The nurse tried to get blood out of the thing but couldn't. It was totally clogged with butter and bacon fat!
We found early on that I needed to have my port flushed every 4 weeks. I got so damn busy last month I TOTALLY forgot to go in for my flush.
The nurse loaded it full of some liquid that would dissolve the blood clot that was in the port.
WAIT A FRIGGIN' MINUTE!
BLOOD CLOT?!!!
Don't those kill people?
Thursday, January 14, 2010
Dexter star Michael C. Hall diagnosed with Hodgkin's Lymphoma
So I have a bone to pick with Mr. Hall!
In every article I have read, he refers to Hodgkin's Lymphoma as being "Imminently Curable and treatable". He keeps making comments that the Hodge is not that big of a deal. People still die from this shit Dexter!
I think in order for him to make this up to me, he needs to arrange a small walk on role for me on Dexter...
Posted from a news release:
Michael Hall, an actor who has played a role on a number of TV shows including Six Feet Under and Dexter has reportedly been battling cancer. He announced the news yesterday, but did not say when he was diagnosed.
"I feel fortunate to have been diagnosed with an imminently treatable and curable condition, and I thank my doctors and nurses for their expertise and care," Hall, 38, said Wednesday in a statement. His medical team is based in the Los Angeles area.
His spokesman, Craig Bankey, said Hall’s cancer is in remission but the actor will continue scheduled treatments.
Mr. Hall and his wife "Dexter" costar Jennifer Carpenter plan to attend Sunday's Golden Globes as Hall's dominated for the best dramatic actor and the show as the best drama. He is nominated for his role as Dexter Morgan, a serial killer working with the police.
He also plans to attend the Screen Actors Guild Awards the following Saturday, where Hall and the cast are also nominated. He will return to shooting the fifth season of Dexter later this year.
His father died of cancer when Hall was eleven years old.
Tuesday, January 5, 2010
Ethan Zohn, winner of Survivor Africa, Talks About Hodgkin’s Lymphoma
THIS IS A REPOST FROM THE GREAT FOLKS OVER AT GiveForward.com!
Most reality TV stars have their fifteen minutes of fame and then are never heard from again (unless of course they later appear on the Surreal World). But Not Ethan Zohn. In 2002 Ethan took home $1,000,000 for winning Survivor Africa and instead of wasting his money like so many others, he used it to help start a non-profit called Grass Roots Soccer that fights the spread of HIV/AIDS. Today, the organization has helped educate over 300,000 young people in 15 different countries around the world and has some pretty heavy hitters like Bill and Melinda Gates, Nike and the Ford Foundation backing it.
But conquering reality TV and co-founding a global non-profit pale in comparison with Ethan’s most recent challenge – a battle with cancer. Since last April, Ethan has been publicly battling a rare form of Hodgkin’s Lymphoma. Fortunately, Ethan had some great news recently. As reported by People Magazine on December 10, Ethan’s most recent PET scan showed that this Survivor is crushing cancer and for the first time since his diagnosis he has no active cancer cells in his body.
Not only did Ethan beat cancer, but by taking his battle public he has helped others get diagnosed including a 25-year-old GiveForward user who raised $1800 on GiveForward for his Hodgkin’s treatments after reading an article about Ethan in People magazine.
I recently had the opportunity to chat with Ethan about his battle with Hodgkin’s Lymphoma and how young adults are falling through the cracks in the fight against cancer. You can also read the original unedited interview on PlayCity
Ethan Austin: In your battle with Hodgkin’s Disease you’ve managed to keep a positive attitude throughout. How does fighting cancer compare with some of the other things you’ve done in your life like winning Survivor or starting a global non-profit?
EZ: It doesn’t even compare at all. This is by far the most difficult thing I have ever faced. I mean this is the closest I’ve ever come to death. You might look okay on the outside but inside your body, there is a war of the worlds going on. It’s a challenge. But I just got some really good news the other day so I’m feeling okay.
EA: You’ve been very public about your fight. A lot of people with cancer choose to keep the matter private. Is there anything you want to say to other young people out there battling Hodgkin’s?
EZ: I’ve been fortunate enough to have this platform to speak and I hope to be a megaphone for this generation. By being so public my goal has really just been to bring awareness to the issue. Young people in their 20s and 30s are often forgotten in the fight against cancer. There’s been huge improvements in survival rates for older adults and with pediatric cancers but survivor rates for young adults haven’t improved in 30 years. Today, a young adult has the same chance of getting and dying of cancer as they did in the 1970s. Our demographic has fallen through the cracks on every front including clinical, research, financial and pychosocial.
EA: In your opinion, what needs to be done so our generation stops falling through the cracks so to speak?
EZ: We need more money to go to research for treatment. For those with cancer or those who will diagnosed with it, new treatments can literally be a matter of life and death. But improving survival rates is not just about more money for research. It’s also about early detection.
Early detection is one of the biggest keys to surviving cancer, but most young adults are diagnosed with Stage IV when it’s often too late. One of the problems is that our generation thinks we’re invincible. Many students and young professionals either don’t have access to doctors or choose not to see them. Part of the problem also lies with the health care providers. A lot of doctors misdiagnose cancer. They think the patient is too young to have cancer so they don’t diagnose it until its too late. We need to train health care providers to consider cancer as a possibility to ensure earlier diagnosis.
There are other issues that we need to work on as well such as lack of access to clinical trials and the lack of age-appropriate support for young adults with cancer. At treatment, I see older and younger. Diapers and dentures. I feel like I’m the only going through this because I never see anyone like myself. But on the positive side, I think the voice of the young adult with cancer is now being heard. We each have a role to play in supporting research and it’s urgent that everyone continues to support this effort.
EA: Last Question. This one is non-cancer relatated: I’ve heard you appeared on an episode of Discovery Channel’s Pitchmen with the late, great Billy Mays to pitch the EZCrunch Bowl (a bowl that is supposed to keep cereal from getting soggy). Please indulge us. Does this thing really work, or did you just come up with the idea because you wanted to meet the one and only, supremely awesome Billy Mays?
Ha. Yeah it really works. I had the idea back in college in 1994. I was just trying to come up with something fun that makes people happy.
[editors note: Ethan was too modest to plug EZ crunch bowl but I have done an independent investigation and early reports indicate that the bowl is going to be awesome to quite awesome. You can be the first on your block to own this revolutionary cereal-saving device by pre-ordering yours today at EZcrunchbowl.com]
Cancer, you are STILL my Bitch!
Yeah, that's right Mr. Cancer! You are still my BITCH!
Pet scan came back clean, no evidence of disease!
I still have a few enlarged nodes in my chest, but they are unchanged from my last 4 PET/CT scans and have 0 uptake.
That's why I'm like "Fuck-a-bunch-a-cancer"!
Pet scan came back clean, no evidence of disease!
I still have a few enlarged nodes in my chest, but they are unchanged from my last 4 PET/CT scans and have 0 uptake.
That's why I'm like "Fuck-a-bunch-a-cancer"!
Tuesday, December 1, 2009
Another PET scan...
I have my 2.5 year PET scan coming up in a week or so.
Good times! Maybe they will have Christmas tunes at screamingly loud levels during the scan like they did last year!
YEAH!
Good times! Maybe they will have Christmas tunes at screamingly loud levels during the scan like they did last year!
YEAH!
Wednesday, October 21, 2009
2 YEAR CANCERVERSARY!
That's right folks! It has been 2 years since I kicked Mr. Cancer square in the balls!
Fuck you Cancer!
Fuck you Cancer!
Thursday, October 8, 2009
Breast Cancer Awareness Month?
Breast Cancer Awareness Month? That's right. October is Breast Cancer Awareness Month.
You show me someone who has NOT heard of Breast Cancer and I will show you the most ignorant son-of-a-bitch to walk the earth!
Where's my Lymphoma Month?
You show me someone who has NOT heard of Breast Cancer and I will show you the most ignorant son-of-a-bitch to walk the earth!
Where's my Lymphoma Month?
Friday, October 2, 2009
Sad...
Yesterday one of my Hodge Friends lost her 13 year battle.
Adrienne, you will be missed.
The photo below was taken in Boston a year or so ago.
Adrienne is on the far left.
Adrienne, you will be missed.
The photo below was taken in Boston a year or so ago.
Adrienne is on the far left.
Friday, July 31, 2009
My blog was mentioned in Newsweek!
The other day, Newsweek did a story on young folks with cancer. They talked about how we use humor to get through the whole cancer thing. In the article, they mentioned a few humorous cancer blogs, mine was one of them.
Below is the article.
A Malignant Melanoma Walks Into a Bar...
Cancer kills more young people than any other disease, and survival rates have not improved in more than 30 years for people in their 20s and 30s. How some patients are using humor to fight back.
Crammed inside a subway car in Manhattan—feeling remarkably generous, as I often do these days—I smiled at a young woman with a fancy black ponytail hairdo who was intensely staring at me. She didn't smile back. She said: "This is the second time you stepped on my shoe."
It was quite possible that I stepped on her foot. I'm a little clumsy nowadays. Almost three years ago, at age 29, I was diagnosed with stage III colon cancer The chemotherapy treatment that followed left me, among other keepsakes, with neuropathy in my feet, numbness and tingling similar to what advanced diabetes patients experience. One day I walked two blocks barefoot before I noticed my missing sandal.
"I'm sorry," I said, then whispered, "I know this will sound strange, but I can't feel my feet."
She rolled her eyes.
It was funny. In this crowded train, nobody was paying attention to my cancer, and it all seemed surreal again: my numb feet, my uncertain life expectancy, the loneliness, all coupled with gratitude for being alive, even if it means sharing a world with this bitch on the 1 train.
Cancer. Hilarious. I later typed these words into Google and found Kaylin Andres, a 24-year-old San Francisco fashion designer who was diagnosed with Ewing's sarcoma, a rare form of bone cancer normally fond in children, last September. She uses her blog, Cancer Is Hilarious, to document her experience in a way young people could relate. Thank God for cancer humor. I need something other than yet another study that offered grim survival rates or scary-sounding side effects.
Cancer Is Hilarious is just one of the hundreds of blogs combining realistic cancer confessions with humor: Making Cancer My Bitch. My Blood Hates Me. What’s Up Your Butt?Kiss My Bald Head. I’m Not an Asshole. Surgically Speaking. I’ve Still Got Both My Nuts. Virtually all of them are written by cancer patients younger than 40. The blogs are just one way younger patients are addressing the absurdity of life with cancer with humor, rather than pink-ribboned, glassy-eyed earnestness.
About 70,000 people between the ages of 18 and 40 are diagnosed with cancer every year, representing about 6 percent of all new cancer cases. About 10,000 young adults die from cancer annually, more than from any other disease. This is not the best statistic to stumble on when you are looking online for hope, as I did in September 2006 after my doctor told me he found a growth in my colon. There I was—nonsmoker, athlete, young—diagnosed with colon cancer, the disease that more commonly afflicts overweight, elderly men. And all I could think was: how inconvenient. I was a travel writer and had just scheduled trips to Rome and Cologne for the following week. Bummer. I would have to reschedule those flights.
Then I did what anyone of my generation would do: I Googled "colon cancer." Within seconds, I found out that my cancer stage, advanced stage IIIC, gave me a 44 percent chance to survive five years. I swore I would never use the Internet to research colon cancer again. (That promise lasted all of five days)
At the same time, I started receiving books, stacks of self-help volumes from well-meaning people. Books claiming that cancer was hate materialized in the body of people who don't love enough. Books promising you can cure cancer by drinking wheat-grass juice. It made me want to throw up, even before my chemotherapy regimen started and I became a vomiting expert. I didn't need more things to make me feel guilty and excluded. I already felt like an outsider. I was by far the youngest patient in the oncology ward. I was too cynical to believe herbal remedies were going to cure me but unwilling to venture onto medical Web sites, where the depressing prognosis stats were lurking, ready to scare the hell out of me.
That's when I found Planet Cancer, the most popular cancer humor Web site. It was founded in 1995 by Robin Blue, Paul Cox, and Heidi Schultz Adams, Texans and cancer survivors then in their 20s. They coined the term "cancertainment" to describe the growing subculture of young cancer patients seeking both more information and a space to indulge in inside jokes like "What's one of the top reasons to date a cancer chick? Recreational drugs are paid for by insurance."
According to Kairol Rosenthal, author of Everything Changes: The Insider's Guide to Cancer In Your 20's and 30's, the traditional cancer support system is set up to deal with older patients. Young people want to talk about different issues that the typical cancer patient might consider taboo: How do I have sex with a colostomy bag? How do I masturbate in a hospital? Will I have to choose between chemo and grad school? Rosenthal, a slim brunette with a posture of a dancer, was diagnosed with thyroid cancer nine years ago, when she was a modern dance choreographer. Unable to take radiation treatment, she currently has two tumors resting on her jugular vein, although they haven't been growing. Now 36 years old, the Chicago resident doesn't believe in the benefits of thinking positive. "I believe in the power of realistic thinking," she said. "And the reality is, you know, this sucks."
This is a sharp departure from the cancer survivorship rhetoric of the last 20 years. For members of an earlier generation, curing oneself of cancer was often associated with turning inward to positive thinking and spirituality and away from anything resembling cynicism and irony. Experts nowadays say that the power of positive thinking might be overrated (thankfully). Jimmie Holland, a psychiatrist at the Memorial Sloan-Kettering Cancer Center in New York and the author of The Human Side of Cancer, confirms that patients often feel that being sad, scared, upset or angry is unacceptable and that emotions can somehow make their tumors grow. "For most patients, cancer is the most difficult and frightening experience they have ever encountered," she writes, and she argues that the emphasis on positive attitude invalidates people's natural and understandable reactions to a deadly disease. "Many negative, pessimistic people survive cancer, while others who believe positive attitudes will cure it do not. I do not believe for an instant that people whose cancer progresses have a weaker spirit or character than anyone else."
Despite their cynicism, young cancer patients are some of the most vocal cancer activists out there, precisely because they don't feel like they need to whisper after they lose a breast, a testicle, or sex drive. They start foundations, write books and blogs, launch clubs, and use technology to spread the news. Garland Harwood, a 29-year-old public-relations manager, combined both advocacy and humor when he planned a fundraising event on behalf of the American Cancer Society of Brooklyn, N.Y., which helped when he was diagnosed with sarcoma four years ago. Leery of the usual cancer fundraising event, where clichés are recited and pictures of deceased patients put up in a heart-wrenching slideshow, Harwood instead launched "Comedy for Cancer," a fundraising event in Brooklyn, featuring the stand-up comedian and Hodgkin's lymphoma survivor Nick Ross.
Ross, 27, first got the idea to create a stand-up show about cancer last year, when a man sitting on next to him on the bus asked: "Did you shave your head because you're losing your hair?" Ross, briefly appalled by the incongruity of the question, decided to be brutally honest: "No, man. I am on chemotherapy." Hoping to reconcile with a bald cancer patient, the man offered: "I am in AA." The man's friend chimed in, "I'm addicted to porn." Ross compiled this and other absurd moments in his life as a marginalized citizen in his 35-minute stand-up show, excerpts of which he performed at the fundraiser.
"Comedy for Cancer" was a huge success and resonated especially well with the "Brooklyn hipster crowd," says Harwood. Only one person in the audience, a cancer patient, said later it was "just too much." Cancer was traumatic for her, and joking about it made it worse.
The reality of cancer among young patients obviously isn't funny at all. As a group, we often fall into a no-man's land between pediatric oncology and adult oncology, with few traditional outlets able to cater to our needs. Young adults are the largest underinsured group. We face threats not just to our lives but our fertility, dating prospects, and financial stability. Often, we're long misdiagnosed as "too young for cancer," and by the time the disease is identified, it's too late for an effective treatment.
Jill Harrison, a 26-year-old director-playwright, was misdiagnosed by her general practitioner for months after "getting the flu over and over" five years ago. She had lung cancer, an unlikely scenario for a 21-year-old nonsmoker with no family history of lung cancer. After a successful surgery and no reoccurrence of cancer so far, Harrison is grateful her generation and many of her friends were comfortable with "putting it all out there." Humor and openness, she said, saved her life. She has just finished writing a play called In Search of Hope. It starts with the main character, Hope, walking into a radiation room insisting that she be allowed to bring in her iPod to drown out the radio, playing Tony Bennett's "Put On a Happy Face."
But Harrison looks for meaning behind all the humor and sarcasm. To her generation, she says, "everything is funny." She argues that while funny cancer blogs create an instant community, they fail to truly connect people. "It's just another version of not talking about it," she says. She found the right mix of support and cancertainment through the foundation I'm Too Young For This! "They are a rocking young-adult support group because they are all about inspiring connections and talking about 'it,' " she says.
The I’m Too Young For This! Web site functions as an aggregator of all organizations and blogs by young patients. It uses the arts and social media to organize, mobilize and activate young adults, destigmatize cancer as a death sentence, and make it easy to talk openly. They sell "Stupid Cancer" merchandise (WHITE BLOOD CELLS ARE FOR LOSERS T shirt, anyone?) and organize Stupid Cancer Happy Hours. "There are huge generational disconnects with the old-school, big-box cancer societies," said Matthew Zachary, the founder and CEO of the I'm Too Young For This Cancer Foundation. "We're trying to be more hip and more relevant whereas those other charities come across as stodgy and out of touch."
As a part of the foundation's outreach effort, Zachary, 35, a survivor of pediatric brain cancer diagnosed in college, has been producing and co-hosting The Stupid Cancer Show out of the foundation's office in New York. With more than 18,000 live listeners each week, the internationally syndicated live talk-radio broadcast has become the voice of young adults with cancer. For the last two years, every Monday night he has been interviewing doctors who often have the "personality of oatmeal," mobilizing cancer patients to "kick cancer's ass," and being the cancertainer that he is, offering endless cancer jokes.
It's not always easy to poke fun at cancer. Zachary's friend, Susan Cross, 38, had just died of brain cancer the week before that day's show. During the broadcast, he asked everyone who was listening—PEOPLE at home, hospitals, and at work—FOR a brief moment of silence. One young adult dies of cancer every hour, he said. "Do I ever get numb?" he asks his audience. "I do, honestly."
So do I. Though I have been cancer-free since I finished chemo more than two years ago, I will always remain a cancer girl—THE affectionate nickname bestowed on me by friends. Last year, a genetic test reveled that my mother and I are carriers of the Lynch syndrome, an inherited gene mutation that causes not only significant risk of colorectal cancer (check), but also cancers of the uterus, ovary, stomach, small intestine, hepatobiliary tract, urinary tract, brain, and skin. So, aside from breast and lung cancers, I'm well suited for a BINGO on my oncology scorecard. My doctors try to be one step ahead by giving me annual colonoscopies, semiannual stomach endoscopies, annual PET scans, twice yearly blood work, annual skin checkups, twice yearly gynecologic smears and ultrasounds, and something else I'm probably forgetting. Chances are, on any given day, I'm either scheduling or rescheduling a doctor's appointment, waiting in a specialists' office or having a scope put in one of my body cavities.
Still, I have always joked about cancer, often to put other people at ease. At times, making jokes feels just as thin, forced, and fake as those HANG IN THERE kitten posters. But often, the reality is so overwhelming that all I can do is laugh.
At the Mercury Bar in New York's Hell's Kitchen, a fitting neighborhood for cancer survivors' bash, cancer patients and survivors below the age of 40 got together in May for a regular happy hour organized by I'm Too Young For This! "Chemo shooters" and "cancertinis" (basic shots and martinis, rebranded) were being served, and with cocktail in hand, nobody looked particularly sick—OR at least not the way "an amateur" would imagine a stereotypical cancer patient to look like. The invitation promised the event would attract people "who don't care whether you have one boob, one ball, two ports or even a hyperactive platelet count," and between the three dozen people who attended, my informal survey added up to at least 50 breasts and approximately as many testicles. People introduced themselves and their friends as efficiently as one would expect from the text-message and Twitter generation: Jennifer, ovarian, five years ago. Scott, testicular, three years in July.
Some attendees, such as Lindsey Brass, 29, went through relapses. Brass, a leukemia patient diagnosed at the age of 24 and relapsed by 25, finished law school last year just months after finishing chemo. At the bar, she mingled with other patients whom she met at previous events months ago and hadn't seen since. "People have been telling me 'We haven't seen you forever. Wow, you are alive!' " she said. "It is kind of a sick thing to say if you think about it." She laughed. Mortality jokes got progressively funnier as the night went on. It was hilarious. Really. You had to be there.
Please help me promote my funny cancer shirts!
I am looking for Bloggers to place my FunnyCancerShirts.com banner into the sidebar of their Cancer blogs. The site is getting a lot of exposure, sales have been great. You can feel all warm and bubbly knowing that a portion of each sale will be donated to a different cancer charity. The more shirts I sell, the more money I donate. Anything you could do to help with this would be GREAT!
Thanks in advance,
Ryan
Cut and paste the info from the text box below to add this animated banner to your page. Perfect size for the sidebar of your blog!
Cut and paste the info from the text box below to add this animated banner to your webpage.
If you just want to go crazy, and do some SUPER PROMOTING, cut and paste the info from the text box below to add this HUGE Funny Cancer Shirt ad to your page. Because of its size, you would need to place this code into a "New Post" on your Blog.
If anyone needs help with adding the codes to your website or blog, please contact me.
Thanks in advance,
Ryan
If anyone needs help with adding the codes to your website or blog, please contact me.
Sunday, July 26, 2009
Hodgkin's Lymphoma gains notable corporate sponsors!
Below is a re post from a friend and fellow Hodgkin's ass kicker, Dwayne. Be sure to check out his blog, http://www.journalofaprizefighter.com
He is MUCH better at writing than I am...
Many people in the Hodgkin's community are unaware that we have several influential voices in corporate America.
Taco Bell President - Greg Creed and Honeywell International - Senior-Vice President Adriane Brown, are emerging as strong advocates for Hodgkin's research. Taco Bell is a household name and diversified manufacturer, Honeywell, is one of the top 50 largest companies in the country.
These two powerful executives reside on the Board of Directors for the Alese Coco - Fight 2 Win Foundation. This New York based foundation is dedicated strictly to Hodgkin's research. Alese was also my friend and we often conversed while she was being treated at Sloan-Kettering.
On July 1, 2009, Greg Creed and Taco Bell facilitated the taping of the first ever Public Service Announcement for Hodgkin's Lymphoma, which was taped at Paramount Studios in Hollywood, California. The PSA was directed by the Russo Brothers who directed Arrested Development and the motion picture, You, Me & Dupree.
I spoke to Paul Coco (Alese's father) last week and he described the PSA as: "Both challenging and gripping. It will bring much needed attention to a lymphoma that receives far too little consideration from pharmaceutical companies for research." He continued: "The fact is that Hodgkin's has somewhere between 25% - 40% recurrence rate and nearly half of all stem cell transplants fail, and that's unacceptable. We're striving for complete cure."
The 30 second spot will begin airing nationally on several major networks beginning this September.
I will keep you posted on details as they became available.
The foundation's website is www.fight2win.org
He is MUCH better at writing than I am...
Many people in the Hodgkin's community are unaware that we have several influential voices in corporate America.
Taco Bell President - Greg Creed and Honeywell International - Senior-Vice President Adriane Brown, are emerging as strong advocates for Hodgkin's research. Taco Bell is a household name and diversified manufacturer, Honeywell, is one of the top 50 largest companies in the country.
These two powerful executives reside on the Board of Directors for the Alese Coco - Fight 2 Win Foundation. This New York based foundation is dedicated strictly to Hodgkin's research. Alese was also my friend and we often conversed while she was being treated at Sloan-Kettering.
On July 1, 2009, Greg Creed and Taco Bell facilitated the taping of the first ever Public Service Announcement for Hodgkin's Lymphoma, which was taped at Paramount Studios in Hollywood, California. The PSA was directed by the Russo Brothers who directed Arrested Development and the motion picture, You, Me & Dupree.
I spoke to Paul Coco (Alese's father) last week and he described the PSA as: "Both challenging and gripping. It will bring much needed attention to a lymphoma that receives far too little consideration from pharmaceutical companies for research." He continued: "The fact is that Hodgkin's has somewhere between 25% - 40% recurrence rate and nearly half of all stem cell transplants fail, and that's unacceptable. We're striving for complete cure."
The 30 second spot will begin airing nationally on several major networks beginning this September.
I will keep you posted on details as they became available.
The foundation's website is www.fight2win.org
Curb Your Enthusiasm!
Curb Your Enthusiasm has got to be one of my favorite shows of all time.
Recently, I started to re watch them. Will the new season ever start?
Anyway, in episode 34 of season 4 titled "The Weatherman", there is an ongoing joke about Hodgkin's Lymphoma.
When this originally aired, I gave it no thought, because I did not know I had the Hodge.
Anyway, give it a watch, hysterical!
"The good Hodgkins"
When Dr. Funkhouser's receptionist (Alyson Lyon) tell Larry that the Doctor "is not himself lately" because his uncle has Hodgkins disease, Larry says, "but it's the good Hodgkins." Hodgkin's disease is a type of lymphoma, a cancer that can occur in the lymph system. There are two types of lymphoma: Hodgkin's disease and non-Hodgkin's lymphoma.
Thursday, June 25, 2009
My 18 month PET/CT Scan results!
Today was my Oncologist visit to get the results from my 18 month pet/ct scan. Everything was great.
There were a few small areas that were enlarged. These lymphnodes were the same size for my last 3 scans, no new growth. They are making me get scanned again in 6 months just to be sure.
So far so good.
Click below to read the full report.
There were a few small areas that were enlarged. These lymphnodes were the same size for my last 3 scans, no new growth. They are making me get scanned again in 6 months just to be sure.
So far so good.
Click below to read the full report.
Wednesday, June 17, 2009
Look at my innards!
Just loaded my PET/CT scan from today.
Everything looks good to me, but I am not trained at reading these damn things. I will not get the "official" word until next week.
There are a few little spots that are glowing though. I hope they are just my kidneys. They are glowing on both sides, hopefully nothing to worry about.
Have a look!
Everything looks good to me, but I am not trained at reading these damn things. I will not get the "official" word until next week.
There are a few little spots that are glowing though. I hope they are just my kidneys. They are glowing on both sides, hopefully nothing to worry about.
Have a look!
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